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    » Patient-Reported Outcome Instruments

    » Major Organizations and Research Groups

    » Major Journals for the number of articles on Patient Reported Outcomes

    » Methodology

    » On-Line Newsletters

    » Instructions to Authors

    » Bibliographic Research


    Patient-Reported Outcome Instruments
    • American Academy of Pediatrics - Assessment Tools: See
    • American Thoracic Society QoL Instruments: See
    • Asthma Quality of Life Questionnaire (AQLQ): See
    • American College of Allergy, Asthma & Immunology (ACAAI) - LIFE QUALITY: See
    • A computer-assisted instrument to assess health-related quality of life in children and adolescents:See
    • BASIS-32 Behavior and Symptom Identification Scale: See
    • Brief Pain Inventory: See
    • Consumer Assessment of Health Plans Study (CAHPS): See
    • Children's Dermatology Life Quality Index (CDLQI): See
    • Children with special health care needs: See
    • Child Health Questionnaire (CHQ): See
    • Child Health Care Quality Toolbox: See
    • Core MOS measures of quality of life: See
    • Healthy Days Measures (CDC HRQOL): See
    • Dartmouth COOP Charts: See
    • Dermatitis Family Impact (DFI): See
    • Dermatology Life Quality Index (DLQI): See
    • Expanded Prostate Cancer Index Composite (EPIC): See
    • The Educational Testing Service (ETS) Test Collection database contains records on over 25,000 tests and research instruments: See
    • EuroQol: See
    • The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: See
    • Generalized Perceived Self-Efficacy Scale: See
    • Geriatric Depression Scale -- GDS: See
    • Health Utilities Index (HUI): See
    • Health-related quality of life measures from HIV Cost and Services Utilization Study: See
    • HIV-PARSE Baseline Questionnaire: See
    • Instruments' List from the Australian Centre of Quality of Life: See
    • Lung Cancer Symptom Scale (LCSS): See
    • Multidimensional Health Locus of Control (MHLC) ScalesSee
    • MacNew Heart Disease Health-related Quality of Life Questionnaire (MacNew): See
    • Memorial Pain Assessment Card: See
    • Migraine Disability Assessment (MIDAS): See
    • Mini Mental State Examination:See
    • Multiple Sclerosis Quality of Life Inventory (MSQLI): See
    • The MOS Social Support Survey: See
    • Palliative care Outcome Scale (POS): See
    • Patient Satisfaction Survey: See
    • Patient Satisfaction Questionnaires (PSQ III) (PSQ-18): See
    • Pediatric Quality of Life Inventory (PedsQL): See
    • Pediatric asthma symptom scale: See
    • Psoriasis Disability Index (PDI): See
    • EORTC QLQ-C30: See
    • Symptom Checklist-90-RevisedTM (SCL-90-R®): See
    • Toolkit of Instruments to Measure End of Life Care (TIME): See
    • RAND 36-Item Health Survey 1.0: See
    • Wisconsin Quality of Life Index (W-QLI): See
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    Major Organizations and Research Groups
    • American Thoracic Society - Quality of Life Group: See
    • Australian Centre on Quality of Life: See
    • Australian Health Outcomes Collaboration: See
    • Cancer and Leukemia Group B (CALGB): See
    • Cardiff Research Consortium: See
    • Centers for Disease Control and Prevention's Division of Adult and Community Health: See
    • The Center for Gerontology & Health Care Research: See
    • The Center for Health Quality, Outcomes and Economic Research: See
    • Center for Health Outcomes and Policy Research, University of Pennsylvania: See
    • Center for Health Outcomes, Policy, and Evaluation Studies, The Ohio State University (HOPES): See
    • Centre for Health Program Evaluation (CHPE): See
    • Center for Health Quality, Outcomes & Economic Research (CHQOER): See
    • Center for Outcomes Research, University of Massachusetts: See
    • Center for Pharmaceutical Outcomes Research, University of North Carolina at Chapel Hill School: See
    • Centre for Health Economics, University of York: See
    • Cochrane Collaboration: See
    • COnnaissances et Décision en EConomie de la Santé (base CODECS): See
    • Department of Health Care Policy Harvard Medical School: See
    • Department of Health Services, University of Washington: See
    • Department of Medicine, Clinical Epidemiology and Biostatistics, McMaster University: See
    • Department of Palliative Care and Policy, London: See
    • EORTC Quality of Life Study Group:
    • Health Assessment Lab (HAL): See
    • Health & Survey Research Unit: See
    • The Health Measurement Research Group: See
    • Health Services Research - UCLA: See
    • Health Utilities Group (HUG): See
    • Human Services Research Institute:See
    • International Society for Quality of Life Research (ISOQOL): See
    • International Society for Quality of Life Studies (ISQOLS): See
    • International Society for Pharmacoeconomics and Outcomes Research (ISPOR): See
    • Irish Clearing House on Health Outcomes: See
    • Mapi Research Institute and Mapi Research Trust
    • Medical Outcomes Trust: See
    • Medical Technology& Practice Patterns Institute (MTPPI): See
    • National Center for Health Outcome Development (includes the Patient-assessed Health Instruments database): See
    • National Institute on Alcohol Abuse and Alcoholism (NIAAA): See
    • New England Research Institutes, Inc. (NERI): See
    • Pain Research Group (PRG): See
    • Picker Institute Europe: See
    • Plymouth Health-related Quality of Life Research Centre (PQOL): See
    • Quality of Life Research Unit, University of Toronto: See
    • QualityMetric: See
    • RAND Health Program: See
    • Société Française de Neurologie & GRECO (in French): See
    • Stratis Health: See
    • St Ann's Hospice: See
    • UCSD Health Outcomes Assessment Program: See  
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    Major Journals for the number of articles on Patient Reported Outcomes
    • British Medical Journal: See
    • Health and Quality of Life Outcomes: See
    • Journal of American Medical Association: See
    • Medical Care: See
    • Quality of Life Research: See
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    Methodology
    • CDC Health-Related Quality of Life: See
    • Choosing a Health Outcome Measurement Instrument: See
    • Focusing on Quality in a Changing Health Care System: See
    • Measurement of Health-Related Quality of Life in Chronic Disease: See
    • Quality of life compendium: See
    • Quality Assessment (AHRQ): See
    • The RAND Tools for Assessing Quality of Life and Health Status: See
    • World Database of Happiness: See
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    On-Line Newsletters
    • ISOQOL: See
    • Mapi Research Trust: See
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    Instructions to Authors
    • Health Services Research/Public Health Journals-Instructions to Authors: See
    • Instructions to Authors in the Health Sciences: See
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    Bibliographic Research
    • NLM's Databases & Electronic Information Sources - free access to MEDLINE: See
    • Library of Congress: See