» Patient-Reported Outcome Instruments

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» Major Journals for the number of articles on Patient Reported Outcomes

» Methodology

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» Instructions to Authors

» Bibliographic Research

• American Academy of Pediatrics - Assessment Tools: See
• American Thoracic Society QoL Instruments: See
• Asthma Quality of Life Questionnaire (AQLQ): See
• American College of Allergy, Asthma & Immunology (ACAAI) - LIFE QUALITY: See
• A computer-assisted instrument to assess health-related quality of life in children and adolescents:See
• BASIS-32 Behavior and Symptom Identification Scale: See
• Brief Pain Inventory: See
• Consumer Assessment of Health Plans Study (CAHPS): See
• Children's Dermatology Life Quality Index (CDLQI): See
• Children with special health care needs: See
• Child Health Questionnaire (CHQ): See
• Child Health Care Quality Toolbox: See
• Core MOS measures of quality of life: See
• Healthy Days Measures (CDC HRQOL): See
• Dartmouth COOP Charts: See
• Dermatitis Family Impact (DFI): See
• Dermatology Life Quality Index (DLQI): See
• Expanded Prostate Cancer Index Composite (EPIC): See
• The Educational Testing Service (ETS) Test Collection database contains records on over 25,000 tests and research instruments: See
• EuroQol: See
• The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: See
• Generalized Perceived Self-Efficacy Scale: See
• Geriatric Depression Scale -- GDS: See
• Health Utilities Index (HUI): See
• Health-related quality of life measures from HIV Cost and Services Utilization Study: See
• HIV-PARSE Baseline Questionnaire: See
• Instruments' List from the Australian Centre of Quality of Life: See
• Lung Cancer Symptom Scale (LCSS): See
• Multidimensional Health Locus of Control (MHLC) ScalesSee
• MacNew Heart Disease Health-related Quality of Life Questionnaire (MacNew): See
• Memorial Pain Assessment Card: See
• Migraine Disability Assessment (MIDAS): See
• Mini Mental State Examination:See
• Multiple Sclerosis Quality of Life Inventory (MSQLI): See
• The MOS Social Support Survey: See
• Palliative care Outcome Scale (POS): See
• Patient Satisfaction Survey: See
• Patient Satisfaction Questionnaires (PSQ III) (PSQ-18): See
• Pediatric Quality of Life Inventory (PedsQL): See
• Pediatric asthma symptom scale: See
• Psoriasis Disability Index (PDI): See
• EORTC QLQ-C30: See
• Symptom Checklist-90-RevisedTM (SCL-90-R®): See
• Toolkit of Instruments to Measure End of Life Care (TIME): See
• RAND 36-Item Health Survey 1.0: See
• Wisconsin Quality of Life Index (W-QLI): See

• American Thoracic Society - Quality of Life Group: See
• Australian Centre on Quality of Life: See
• Australian Health Outcomes Collaboration: See
• Cancer and Leukemia Group B (CALGB): See
• Cardiff Research Consortium: See
• Centers for Disease Control and Prevention's Division of Adult and Community Health: See
• The Center for Gerontology & Health Care Research: See
• The Center for Health Quality, Outcomes and Economic Research: See
• Center for Health Outcomes and Policy Research, University of Pennsylvania: See
• Center for Health Outcomes, Policy, and Evaluation Studies, The Ohio State University (HOPES): See
• Centre for Health Program Evaluation (CHPE): See
• Center for Health Quality, Outcomes & Economic Research (CHQOER): See
• Center for Outcomes Research, University of Massachusetts: See
• Center for Pharmaceutical Outcomes Research, University of North Carolina at Chapel Hill School: See
• Centre for Health Economics, University of York: See
• Cochrane Collaboration: See
• COnnaissances et Décision en EConomie de la Santé (base CODECS): See
• Department of Health Care Policy Harvard Medical School: See
• Department of Health Services, University of Washington: See
• Department of Medicine, Clinical Epidemiology and Biostatistics, McMaster University: See
• Department of Palliative Care and Policy, London: See
• EORTC Quality of Life Study Group:
• Health Assessment Lab (HAL): See
• Health & Survey Research Unit: See
• The Health Measurement Research Group: See
• Health Services Research - UCLA: See
• Health Utilities Group (HUG): See
• Human Services Research Institute:See
• International Society for Quality of Life Research (ISOQOL): See
• International Society for Quality of Life Studies (ISQOLS): See
• International Society for Pharmacoeconomics and Outcomes Research (ISPOR): See
• Irish Clearing House on Health Outcomes: See
• Mapi Research Institute and Mapi Research Trust
• Medical Outcomes Trust: See
• Medical Technology& Practice Patterns Institute (MTPPI): See
• National Center for Health Outcome Development (includes the Patient-assessed Health Instruments database): See
• National Institute on Alcohol Abuse and Alcoholism (NIAAA): See
• New England Research Institutes, Inc. (NERI): See
• Pain Research Group (PRG): See
• Picker Institute Europe: See
• Plymouth Health-related Quality of Life Research Centre (PQOL): See
• Quality of Life Research Unit, University of Toronto: See
• QualityMetric: See
• RAND Health Program: See
• Société Française de Neurologie & GRECO (in French): See
• Stratis Health: See
• St Ann's Hospice: See
• UCSD Health Outcomes Assessment Program: See  

• British Medical Journal: See
• Health and Quality of Life Outcomes: See
• Journal of American Medical Association: See
• Medical Care: See
• Quality of Life Research: See

• CDC Health-Related Quality of Life: See
• Choosing a Health Outcome Measurement Instrument: See
• Focusing on Quality in a Changing Health Care System: See
• Measurement of Health-Related Quality of Life in Chronic Disease: See
• Quality of life compendium: See
• Quality Assessment (AHRQ): See
• The RAND Tools for Assessing Quality of Life and Health Status: See
• World Database of Happiness: See

• ISOQOL: See
• Mapi Research Trust: See

• Health Services Research/Public Health Journals-Instructions to Authors: See
• Instructions to Authors in the Health Sciences: See

• NLM's Databases & Electronic Information Sources - free access to MEDLINE: See
• Library of Congress: See

Last update: November 2008